Thursday, April 29, 2021

Surviving Multiple Sclerosis/Medication Switch

This Has been Long over Due. 

I'm sorry I started this all the way in February and am just now getting finished. I know I have been posting pictures and videos on social media. But that's easier than trying to type right now.

So, this particular blog post did take way longer. My apologies to those that were actually waiting. I appreciate you all! 

 2/8  I started a new medication for my multiple sclerosis. One that I was not familiar with. So, I started doing a little bit of research (groups on Facebook) ahead of time. The groups help me get a better understating of what to look out for. As well as a little bit of looking into the website and the little pamphlet I was given.

  What made me depressed about everything; is most medications people can take after and or during the process I can’t take, being that I have allergic reactions to certain medications(please forgive me for not going into detail).

 I think the pain medication that I was already on helped out a lot. And for that I am grateful. 

With that being said I really had to lean on my therapist as well as the family members. Well, the ones that I do communicate with on a regular basis a lot. And they helped me from going further into depression. At that moment in time.

My creative process at the moment was put on the back burner. There were things I wanted to blog about and even make videos about. At that point I just couldn’t get out of my head, I guess.

The new medication is called Ocrevus. I was afraid of the reaction that I'd have afterward. As well as having to get used to not taking the old medication.

 At this point, I'm not sure if the medication switch was a great idea. Or if this progression was set to happen anyway. 

Being as throughout the time I was going through therapy ( occupational/physical). And still ended up with more issues. My hands having spams more than usual being one of them. And I'm not blaming the infusion because with multiple sclerosis it happens(for those of you that don't know)!

I've been having spasms in my hands. Which I was afraid would lock up on me as I type. So, instead of doing this in small increments, I  held back out of fear of my hands locking up on me.

There are also some other issues I have but I won't go into detail at the moment. I'm trying to make sort of a comeback lets see how this goes.

Do you take those infusions?  Or anything similar? If so for what? Has anyone else felt that way? If so what do you do during those times? Do you still push yourself? What is your motivation?

Sunday, February 14, 2021

Surviving Multiple Sclerosis/Change of Medication

I've recently been told I'd have to change the medication I have been multiple sclerosis. From the needle, I have been giving myself since my diagnosis in 2012 (Rebif). To an infusion(Ocrevus) that I don't know anything about. 

  Except for the brief research that I've done; as well as the information had obtained from groups that have been on in.

 On top of me already going through a few other things that just kind of pushed me to lean on my therapist more, and I felt like I needed to do more. 

 So, kind of pushed away from social media a little bit. Doing a little more watching than anything. 

Please bare with me while I get through this. I’ve gotten my first dose since I’ve started this blog. I just came to update this. I’ll be back with an update on my experience soon. 

Monday, January 18, 2021

Keeping The Same Energy


  Pay attention when people are talking to you. . Instead hearing only what you want to hear. And taking bits and peace’s from the conversations.

 It only pushes people away from you in the end. When they realize it.

   One day the same individual will be needed and will remember; that you never actually paid any attention when they needed you to,and in return will end up returning that energy.

Remember to treat people how you want to be treated.


Saturday, January 16, 2021

If You’re Lost as a Parent, Watch This | Goalcast

This is a video I came across that I believe all parents should watch. It is very insightful. Especially with us dealing with this pandemic!

Monday, December 21, 2020

Surviving Multiple Sclerosis/Being a Loner



 I could say it stems from being an only child. Although it has prevented a lot of hurt from the betrayal. And I'm okay with that. Although with me going through my health issues it hurts at times to be alone; I don't think I'd like to be hurt even more, in this position.