Wednesday, June 16, 2021
Monday, June 7, 2021
Sunday, May 30, 2021
Sunday, February 14, 2021
I've recently been told I'd have to change the medication I have been multiple sclerosis. From the needle, I have been giving myself since my diagnosis in 2012 (Rebif). To an infusion(Ocrevus) that I don't know anything about.
Except for the brief research that I've done; as well as the information had obtained from groups that have been on in.
On top of me already going through a few other things that just kind of pushed me to lean on my therapist more, and I felt like I needed to do more.
So, kind of pushed away from social media a little bit. Doing a little more watching than anything.
Please bare with me while I get through this. I’ve gotten my first dose since I’ve started this blog. I just came to update this. I’ll be back with an update on my experience soon.
Wednesday, October 21, 2020
For the past few months, I've been complaining about pain. And I have not been able to see any of my regular doctors. Only after making a complaint was I able to have them get in direct contact with my neurologists.
And he's a little bit older now. So, I think I may have to start looking into getting a new one. Being that all of the last few appointments he's only been consulting via phone.
My primary doctor hasn't been in at all. And they've had another doctor stand-in. And I automatically didn't like his vibes. Being that I could tell he hadn't even looked into my files.
Offering me some meds without even taking into consideration that I have a therapist. And has offered me psych meds several times. Like, don't you think of have maybe been prescribed them by her if I’d needed them already?
Then I've been describing my pain to him over time and he's been kind of overlooking it.
Now I know I have never allergies to certain things. As a doctor, if he's unsure about what to prescribe me; shouldn't he be trying to refer me to someone else? Instead of telling me he couldn't because my Neurologist had given me something else. but had only given me enough to last to my last appointment.
An appointment that the messed up and had to reschedule. A month out mind you. Only to tell me to make an appointment with him for him to still ignore my issue.
And then give me a referral to pain management after me emailing them about their incompetence. Which still resulted in me not getting in pain medication.
At this point, I see why some people's health goes down the drain. And it a very scary site!
Have you experienced this? What do you recommend? Do you find doctors by word of mouth or your own research?
I really need help with this. Please leave your thoughts in the comment section. And also don't forget to follow me!
Wednesday, August 26, 2020
I'm Sorry It took me so long to get this out there.
I've just been going through a lot with these relapses.
Although I'm sure there are people that take way more! I just feel like I take too many.
This was the original thing I wanted to blog about for the past few weeks or so. My body has been having what's considered a relapses they've been preventing me from doing so. And I was giving yet another medication. Which helped at the time. Yet, at right now I'm not so sure being that there's still other issues going on 😢.
With that being said I don't take as much medications now but I still take enough. Which is why I’m not taking as many now( no vitamins😕).
Now I take 5 sometimes 6 (if I’m in pain)prescribed medications(pills) and two different prescribed eye drops )in the morning. As well as 2 allergy pills. In the afternoon I take 3 prescribed pills. In the evening I take 5 prescribed pills. Three days out of 7 I have to give myself a needle(I really hate this part).
And I was taking vitamins on top of it. Yet, I ran out of them since I originally started this. So, it doesn't seem like as much now. If you all have been keeping up;you know the only income I have at the moment is saga, which is literally only $219 a month, I can barely afford to survive as it is.
I was only able to get the vitamins when I got my stimulus check. And I didn't purchase enough to last a long period of time.
If I had the vitamins in the mornings it would be two more. Being that I’ve ran out I haven’t been taking them. There's also another 2 maybe 3 that I didn’t even lost; being that they’re as needed. One I may take more than the others.
I didn't go into the names of all of them and the dosages. Being that I'd probably be here all day. Trying to explain them all , and what they are for.
I'm sure it sounds like I'm complaining. It just tends to get overwhelming at times. I just had to get that off of my chest.
Yes, it took me forever to get this out. Blame the relapses 😂.
Do you take a lot of medications? Or not a lot at all?What are you thoughts on this?
If you have any questions don't hesitate to ask in the comment section. And Please don't forget to follow and share this blog! It would be greatly appreciated.
Friday, August 21, 2020
Monday, August 17, 2020
What I've been going through with multiple sclerosis. And my fears about my children back to school.
Saturday, August 15, 2020
Something else got in the way in regard to my health. I will be posting a video. It will be posted by the end of next week. I did start on the blog( honestly I started it two weeks ago). So, I will try to edit it soon. Please bear with me! Keep me in your prayers I'm trying. My health is just getting in the way. The relapse part of the multiple sclerosis is definitely getting real at this point!
check out this TikTok video for an update for now
Saturday, August 8, 2020
Monday, August 3, 2020
Tuesday, July 28, 2020
Sunday, July 26, 2020
Wednesday, July 22, 2020
Monday, June 8, 2020
I saw this on @multipleclerosisupport on Instagram;And I had to share this with a little story of my own. People assume because I look okay some days I’m I’m not really as sick as I presume to be that I’m fine. Not knowing that there is days that I have were I fight to push through fatigue. Or about my spasms that I have every few days. Or the migraines that I take pills for daily.
If you’re going through something similar drop a comment describing it, and what you do to deal with it! I have a therapist myself and I use aromatherapy.
Tuesday, January 14, 2020
Lately I’ve been having spasms lot more than usual. It happens a lot with me having multiple sclerosis.And let’s just face it I’m overweight. Now is a better time than any for me to use the work out clothes that my gramma got me over the summer.
My first day back in the gym. My Uncle Kelvin and I. That is my I hate taking pictures face. Especially after I had to put my things down. And a nice lady offered to take the photo.
Wednesday, November 20, 2019
depressed),not having my baby with me, and most recently my
But thank you to those of you that take the time out to read my blogs.
Eventually I'll be more consistent with them.
Please,take a moment to check out an ad or
two,shop,follow/subscribe, and share.
Sunday, June 30, 2019
From me getting sick (a relapse from multiple sclerosis), losing primary custody of my youngest son, losing my place of residence, losing my job, to me staying with friends and different family members.
I wouldn't wish any of this on my worst enemies. Although I don't have many. To be honest I don't have any. If I start to feel some type of way I'll just move along. I don't have room in my heart to harbor any hate.
Me not even acknowledging a person/people, and the things they've done/said to me, is more than enough energy for me to give them.
When things take a turn for the better they'd wish they never did or said whatever.
I wish things were different. I'm working towards making it better. Not sure how fast the changes will come. Just know I'm working on it!
While continuing to remember god won't put more on me than I can handle. I'm praying along the way.
I'm praying for a better living situation(I'm partly there) although It's not my own yet. I'm praying for a part time job. I'm praying for my health to stay on the right path. As well as for the perfect health and safety for my kids, my family, and my friends. I'm also praying for the help I need to keep the things we do own that are in storage.
That right now is one of my main priorities.So,once we do get a place of our own we won't have to try and get more things!
Please support and share
What are some things that you pray for?