Showing posts with label Multiple sclerosis. Show all posts
Showing posts with label Multiple sclerosis. Show all posts

Wednesday, June 26, 2019

Somewhat got an offer for housing

 So,I submitted all of the paperwork for housing. The offer was specifically for individuals with Multiple Sclerosis. I got all of the way up there and it was only for a one bedroom. And it was far away from my family and friends.


   68 miles away to be exact. I did submit the paperwork. Although I haven't gotten a call back. If I get it I'd have to take it until something better comes along. In the meantime. I'm still jumping from place to place.


 This particular time I called around to get a spot at the shelters. And of course they don't have any room. I'm happy I found somewhere to go though.


  I'll be filling out for the upcoming rap applications soon. I'd be beyond grateful if I was to get that. Especially if there's enough room for my kids. All three of them. There's nothing like everyone having their own space.

 I hope if you've taken the time out to read this that you'd take the time to share. 


Wednesday, June 19, 2019

We need to take better care of ourselves

  I noticed there’s a lot of people don’t go to the doctors often. Unless they’re sick.  Sometimes they go when its a little too late. Which is not a good thing at all.

 I’m saying this because I’d like people to get on top of it. Schedule regular medical appointments.Follow up and stay on top of things.

  Myself included. I know I have a tendency to ignore things that are going on with my body. I really hate having to go to the doctors. There's almost always something to be concerned about afterwards.For me it is anyway.

 With family members that having major health issues: It should automatically push you to get your health checked out.

 During a few of my regular appointments after being diagnosed with Multiple Sclerosis; I found out that I had two other  health issues. One regarding my heart the other is my Thyroids.

 So, I'm constantly going to medical appointments. Every three months, six months, yearly, and sometimes in-between I have appointments scheduled. I have a primary doctor(even though I'm about to replace him), heart doctor, an endocrinologist,as well as and obgyn. I'd just rather be aware of whats going on.

 I'm just putting this out there to say don't wait until it's too late. Some things  can be treated.  There's also some things can't be treated. But it's easier to try and manage it when you know. Take care of your body! I don't care if it's just a slight cough or a runny nose. Sometimes it's not just a cough or runny nose.

 We also need to try different ways to eat healthier. I know it's easier said than done. Fruits and vegetables can be a little expensive. Now that the weather has changed up lets start looking into the farmers market prices. Heck or even find the closes farm available. And drink lots of water to avoid dehydration.


  This has been on my mind for the last few weeks. I was unsure of how to go about writing about it. I hope you guys take what I am saying into consideration. Take better care of yourselves.

Saturday, June 15, 2019

Got excited too fast

  I really got too excited a few days ago. I told you guys I had a good week. For a short time it was an awesome feeling. That I can say I hope happens more often.
    
  It would’ve been nice if I could say the same today. Last night the tingling came back. This morning the numbness and fatigue came. I wish there was a way to avoid this. So as I type this I’m praying for the best.
   
 With this Multiple Sclerosis I guess I’m wishing for too much. Hopefully it’ll ease up. So I can take another long walk. There’s also a few things I need to get done today.
  
 I hope that all of the walking I did yesterday isn’t what the issue is. Because it had me beat enough to were I had to take an alieve again. 

Wednesday, June 12, 2019

This is week was a good week

 Health wise this was a great one. I had a migraine here and there. My migraine pills work most times. Other times I have to take Motrin or Aleve  to ease them. I actually just took two Aleve pills.
 
   It would probably be nice if I could take Tylenol like most people. Having allergies to certain stuff really sucks.   I'm just happy I don't have to walk around with an Epipen like a lot of people.

 Those of you that do make sure you always have it on hand.  Although last week I woke up with hives. And I have no idea what caused it. I kind of wish I had one then.I sure took them Benadryl  pills as fast as I could. The children's Benadryl would have worked even faster. There's no little babies around us so that was a no go.
 
 I think this particular migraine is caused by me stressing. I have bills that I can't afford to pay. So i'm concerned with how that going to get done. As well as i'm searching for something at the moment that I'd rather not talk about.

I mean you guys already know some of the things i'm searching for (housing, part time job, and how i'm going to keep this storage and phone bill paid). This is just something I'd rather not disclose at the moment.

  I have been applying for jobs. I'm either nowhere near the location. Or don't have a qualification or two they they're requiring. I wish I hadn't been denied my med card. Otherwise I'd be burning the road down in somebody's bus or company vehicle.

  Me driving for a living was kind of relaxing at times. When I was able to site see. And not have to focus so hard on the road and directions. And when I got lost lol. That's what my aunt and I act as though was a game. Even when we were really lost a couple times.

Anyway this migraine is still not easing up.  Even after me taking the Aleve. I'll try to write again later on this week. I just figured I'd come with an article today instead of more pictures and videos. Hopefully you all are or have enjoyed your day!

Wednesday, June 5, 2019

My Convos Pitch/ For a Non Profit company

 A couple of weeks ago I started and account an Convoz. In hopes of winning $25,000 for a start up. My Convoz pitch was to start a non profit for people with Multiple Sclerosis or other life altering health issues. To help with keeping a roof over their heads or maybe even help with paying bills with proof.
   After doing the first few videos  I stopped putting videos on there.Upon doing a little bit of research on the subject I gave up. I didn't realized that it's a little more legwork to do so. Than it is to start a regular company. I know because that I've actually done before.
  I mean a program like the one I suggested is definitely needed. I just believe it would be too much to take on alone. Especially with me still have on and off relapses.
  There is companies like Mslifelines and the National Ms Society. It's just not with some of the specific things people need help with.
 With that being said I hope to one day see a non profit of this sort. It just wont be from me .
https://www.gofundme.com/f/1p8w4rxvhc&rcid=r01-156450513723-ee5b0779b317458d&pc=ot_co_campmgmt_w

Monday, June 3, 2019

Insomnia along with a little fear

  Like most nights it was hard for me to fall asleeep. When I finally stopped reading on my kindle app(yes, I love to read. My writing/blogging just became a need to get things off my chest);put my phone down,and tried to get comfortable, I felt like my body was becoming immobile.
 I literally couldn’t move any of my limbs for almost a minute. Which has me terrified.
  So now instead of sleeping I’m still up writing this. That is why this is titled the way it is. Now I’d actually like to go to sleep. I’m afraid that if do go to sleep I’ll wake up and not be able to move. It sucks because I actually have an appointment in the morning. 
  I’ve read countless articles about things that could possibly happen to me. With me having the multiple sclerosis.Yet,to actually start experiencing these things is unnerving.
 In 2012 when I was diagnosed I had no idea what I was in for. The minor flare ups(relapses) I’ve had was like a walk in the park compared to this. 
One day I’m fine,the next I’m having spasms or shakes. Or weakness, tingling, and let’s not forget numbness.
 Why me? Why did this have to come disrupt my life? Have people looking at me as though I’m not doing enough? When in reality I cannot do too much. Can’t sit too long, can’t stand too long, and apparently can’t sleep too long. 
  I just want things to go back to how they were .And to go back to work. Not have to depend on people. Trust me if it bothers you could you imagine how I feel? Even though I’m grateful for all of the help.
  Just know I wouldn’t wish this on anyone. Including my worse enemy!
   I need to get into a better living situation before things get to that point. So if you have a moment of time, a little compassion,or are just a prayer warrior;Take a moment and pray for me. As well as my babies!

Sunday, May 19, 2019

Surviving Multiple Sclerosis/ help and mental health


      I’ve happened to notice a few things. Over the past couple of months. People say when you need help to reach out. If you don’t speak on it no one know. When is it that when people do they turn a blind eye to it? Which takes a lot out of people because it is really embarrassing.
  Not everyone feels that way. And I understand that some people aren’t in a place to help. It just has me thinking some people end up in even worse situations because of it.
 Whether it be from friends, family, or even programs that are out here to(help) people.
 The programs that are out here to help people have many clauses. And to me most of them don’t make any sense. I sit and think on why people tend to go out and harm themselves and sometimes other people. Now, I understand some people tend to lie about things. Not everyone is built like that.
 A lot of people myself included really need help. And the only way to get them is to be an alcoholic, a drug addicted individual, or to live in a dangerous shelter(yes, I said that).
   Where is the programs for people like me; who can’t get assistance from the state except food stamps and medical(awaiting a disability decision)? What kind of help is really out there?
  I’ve applied for part time jobs. Although I don’t have that many degrees/certificates. The ones I did obtain in the past can’t be utilized. I previously held a Certification Nurse Assistant certificate as well as a commercial drivers license(class b with several endorsements).Both expired one because I hadn’t utilized it in years the other because my current health condition wouldn’t allow them to approve me to work.
Who really wants someone with Multiple Sclerosis(that occasionally has flare ups) driving them around or caring for sick individuals?
  I can’t go back work on my Associates degree, start any program, because I can’t do all of the hours. I’m limited to 20 hours. Which I’m unsure of whether or not I can actually do that. With me having weakness, numbness, tingling, and my leg sometimes giving out on me.
  Is it that people really don’t care, can’t, or won’t help people in positions like mine? Things of this nature really can have a hazardous affect on people’s mental health. Or does that not matter when people aren’t actually taking medication for it? Or not seeking professional help for it?
   I take enough meds already and would rather not have someone judge me any more than what they already are.
  I’m using these blogs and my YouTube channel to vent, gain insight, and eventually gain some type of income. As well as to help myself deal with my multiple sclerosis as well as other people.
 I am on sites: vocal media and  YouTube .Links provided if you have a moment check them out!


 https://vocal.media/authors/tatiana-littlejohn


https://www.youtube.com/channel/UCOzvODbsdT35sTb4bcpj8VQ?view_as=subscriber



Friday, May 17, 2019

surviving Multiple Sclerosis/My Medication

  It is a needle a have to inject 3 times a week. It comes in a prefilled syringe. Sent to me once a month. When I was diagnosed it was highly recommended by my neurologist. And I absolutely hate it. Even though it helps prevent me from having major flare ups. They seemed easier to manage in the beginning.
   I have really light skin and I almost always get red marks. Every so often I get sores at my injection sites. And before you ask Yes, have to inject myself. I’m able to stick it in my thighs, my stomach, the meaty part of my arms, and my butt. Although I usually use my stomach and my thighs. It hurts me when I use the other sites.
   Being that last month I got a sore on one side of my stomach. Which had me using antibiotics for a week. And still has me sitting here with a scab. On Saturday I noticed another sore coming on the other side of my stomach. It really sucks and is painful.Also not cute at all.
 Today I decided to start using my arms as well. It hurt like hell. And I can’t see it at the moment I’m sure it’ll be red when I’m able to look at it. I go to see my doctor next month and I’ll have to tell him about it. If it gets any worse, I’ll have to go and see him a little bit earlier.
I’m writing about it today because I’m sitting here ready to cry about it. He told me the last time I saw him that he may have to make a change to my medication. I’m not sure what to expect with that one. I actually never took the time out to research other medications. What are some of the medications you’ve heard of or take?
  So, I don’t know if I’ll end up with another needle for a shorter period of time. Or some type of pills. I’m about tired of those because I think I take too many already. Although being a Certified Nurse Aide as well as Medication certified(working in a group home). So, at one point in my life I’ve seen people have to take way more medications than I take now. I think its just that fact that I have to take them period; Is why I am even making a complaint.
  It has me wondering if I had never ended up with Multiple Sclerosis would I have still had to take all of these pills? Would I being going through the aches and pains that I experience? Or the hospitalizations? Would I have ended up out of work like I am? Or even living from couch to couch like I am?
I’m to the point were is frustrating me.
  I’m also feeling like it’s taking forever and a day for me to get myself out of this situation. Like I’m making people uncomfortable in their own homes. And the shelter is an option but I’m afraid to go.
   I got a call the other day about an article on the one I’d have to go to. So, I started looking at other articles about the place. One stated someone had gotten stabbed there about two weeks ago. Then about the staff mistreating the people forcing them to sleep in chairs. As well as them having all types of drug addicted individuals and alcoholics around there.
 I mean with the way I’m getting sores that are becoming infected already; I’d probably end up with an even worse infection.
I said all of that to say I hate taking my needle. Even though I’m still going to take it.

Surviving Multiple Sclerosis/ My parents, family, and friends



   Yesterday evening I was in my feelings about my medications. This morning I am not any closer to getting out of them.
    For some odd reason I haven’t been to sleep. I broke night. And when I crash, I’m not going hear anyone. This morning my oldest started texting in him, his sister an I’s group chat. About our cellphone bill.  Upon doing so I realized we’ve ran into yet another controversy. I say we but at this point it is on me.
    As of right now we’re all separated. And he’s the only one with even a little bit of income. His paycheck would leave him with nothing after paying the rest of the bill. Which means I have to take on the task of trying to get money for the rest of the cellphone bill, our storage, and how the heck we’re going to get my daughters things from her College to our storage.
  And of course, being that my parents have been holding me down financially . The only one that I could think of immediately is my dad. Who’s been thankfully helping us out a lot more. As I type this I’m crying.
   The both of my parents may not have much; but they help us as much as they can. Even though it’s not even really their responsibility. I am so grateful for them and it’s not even funny. I don’t know what I would do without the two of them. This is one of the most devastating times of my life.
 
  Now I’ve gotten help from a now old friend; that this situation of mine has caused me to fall out with. As well as much Auntie; and my best friend( who I’m sure will probably say she hasn’t done anything),and she’s done more than she thinks. Even though the situation isn’t ideal. Heck and in both cases I probably shouldn’t be there. But they’ve been a great help as well.  Surprisingly in my old  friends head I was ungrateful. Even after expressing almost every chance I had gotten that I was very grateful.
  I say I’m crying, and I mean I am really sitting here crying as I type this. I’m beyond overwhelmed and am tired of having to lean on anyone. I’m not used to this crap. It’s has me questioning a lot of different things. And also asking why when I  know I shouldn’t. I had been working since I was 15 years old. It hurts me deeply because I can hardly do much .With these flare ups I have going on. Today it’s the shakes(great)
   I’m just happy that I do/did have anyone in our corner. I can only imagine how people that have no one at all do this. This is a burden I wouldn’t wish on any one at all. How do the people that do handle it? What do they do in times like this? Do they speak to counselors The two I spoke to weren’t very much help)? Or psychiatrists?
    I’m sure me speaking about things I’m going through has everyone looking at me sideways. This is the point in my life that I really don’t care how anyone feels. Especially if it isn’t from my children, my parents, and my friends that have actually been through this with us.
 Hopefully you all will see this. When you do just know you’re appreciated! Thank you for holding us down when we couldn’t.
 If you’ve taken the time out to read, please share and donate if you like. I hope this helps someone other than just myself. It helps me by getting all of my crazy thoughts out of my head. Instead of holding the pain and suffering that I’m enduring in.