Showing posts with label ms. Show all posts
Showing posts with label ms. Show all posts

Sunday, May 30, 2021

Surviving Multiple Sclerosis/I wish I could flip a switch


  I honestly wish I could flip a switch and ask god; to take it away. I wanna go back to work. I want to make my own money. I want to have my own place again. I want stop fighting back and forth with disability.

  I'm just not in a position to do what I used to do for anyone. Which is why this particular blog is so meaningful at the moment. 

 Especially on this particular day World Ms Day!

   I will continue to keep on praying to him. And stop questioning him. Although it may be hard at times. This is just something that came to me and I could no longer hold it in!
                     “Sometimes”
             “I wish I could flip a switch”

Thursday, May 27, 2021

Surviving Multiple Sclerosis/Hard being Transparent

   Starting out with this blog. I didn’t think it was going to be as  Hard Being Transparent. Now that I’ve gotten this far along; it has become more of a struggle for me to share. 

Funny that it’s taken me this long to say that right?

  Maybe because I assumed that I’d make it past my age. With  at least not many issues. I’ll get the courage to share more eventually. Being that I’m not going to much into detail.

I needed to take a short break because I started getting flooded with bad news. As my body continued to break down.
  I’m typing this with one finger on my phone.Praying that I don’t get any any symptoms before I get too far into this.  I wanted to share as much as I can. At least before any symptoms began.
 
As you all are aware I started the new treatment. And I continued to have the same issues I had while I was on the last treatment. Throughout that time a few new symptoms popped up. 
 
 And I now have to see two more; oops three more specialists. 

And I’m still not in my own spot on top of it. So, I needed moment. At this point there may be a lot those moments). Please hang in there with me. There will be more content eventually.


As well as a videos)Even though you guys don’t look at them for some reason or another(I can take constructive criticism). 
I’d rather make those at this point and put them on here.

Let me know what you guys think. I changed a few things around as well. 


FYI: I took the ads off because they weren’t beneficial or me. No one was clicking on them. So, it was not doing anything to help me. I need something that is going to help me now. 

Wednesday, October 21, 2020

Some Doctors Really Don't Listen

 For the past few months, I've been complaining about pain. And I have not been able to see any of my regular doctors. Only after making a complaint was I able to have them get in direct contact with my neurologists.

  And he's a little bit older now. So, I think I may have to start looking into getting a new one. Being that all of the last few appointments he's only been consulting via phone.

 My primary doctor hasn't been in at all. And they've had another doctor stand-in. And I automatically didn't like his vibes. Being that I could tell he hadn't even looked into my files. 

  Offering me some meds without even taking into consideration that I have a therapist. And has offered me psych meds several times. Like, don't you think of have maybe been prescribed them by her if I’d needed them already?

 Then I've been describing my pain to him over time and he's been kind of overlooking it. 

  Now I know I have never allergies to certain things. As a doctor, if he's unsure about what to prescribe me; shouldn't he be trying to refer me to someone else? Instead of telling me he couldn't because my Neurologist had given me something else. but had only given me enough to last to my last appointment.

An appointment that the messed up and had to reschedule. A month out mind you. Only to tell me to make an appointment with him for him to still ignore my issue.

 And then give me a referral to pain management after me emailing them about their incompetence. Which still resulted in me not getting in pain medication.

 At this point, I see why some people's health goes down the drain. And it a very scary site! 

 Have you experienced this? What do you recommend? Do you find doctors by word of mouth or your own research? 

  I really need help with this. Please leave your thoughts in the comment section. And also don't forget to follow me!













Monday, June 8, 2020

Still Surviving Multiple Sclerosis


https://drive.google.com/uc?export=view&id=1dBofmqpvd2xQBOtjlQqykBalJujb5fu1
I saw this on @multipleclerosisupport on Instagram;And I had to share this with a little story of my own.   People  assume because I look okay some days I’m I’m not really as sick as I presume to be that I’m fine. Not knowing that there is days that I have were I fight to push through fatigue. Or about my spasms that I have every few days. Or the migraines that I take pills for daily. 
 Remember as in most cases looks can be deceiving. Take into consideration your words and actions can do a lot to a person’s mental health with what they’re already going through as well.

  If you’re going through something similar drop a comment describing it, and what you do to deal with it! 
I have a therapist myself and I use aromatherapy.

Wednesday, November 20, 2019

Back to Surviving Multiple Sclerosis

It's been a little while since I've spoke about my health.

It's not because I didn't want to. I just wasn't sure what I wanted to share.

 And I've also had other things affecting my writing process.

Me still not having an income,depression(yes,I am 

depressed),not having my baby with me, and most recently my 

mom 

and step dad getting into a really bad accident.

By the grace of god they're doing a lot better! 

I'm appreciative of the family members that were able to make sure they were okay!

I'm bothered by this because I am/was unable to do so myself.

My health although it's somewhat stable still has not been back to 

what I'd like for it to be.

Migraines are somewhat normal for me now. Due to me 

having one 

almost everyday.

As well as numbness and tingling.

What I don't miss or wish I could do without all together is the 

tremors.

I got them almost everyday after I was hospitalized the last time.

 So ,me getting them scares me. Although they aren't an everyday thing.

I'm just happy that it's all I have at the moment.

Anything else would have me afraid .

That I'd end up back in the hospital.

The depression comes in from me still not having my own.

My own money, place for my children,and I  .

Definitely unsure how I've been getting but but I have been. 

Which I can actually say I'm actually happy for.

 But thank you to those of you that take the time out to read my blogs.

Eventually I'll be more consistent with them.

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