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Thursday, May 27, 2021

Surviving Multiple Sclerosis/Hard being Transparent

   Starting out with this blog. I didn’t think it was going to be as  Hard Being Transparent. Now that I’ve gotten this far along; it has become more of a struggle for me to share. 

Funny that it’s taken me this long to say that right?

  Maybe because I assumed that I’d make it past my age. With  at least not many issues. I’ll get the courage to share more eventually. Being that I’m not going to much into detail.

I needed to take a short break because I started getting flooded with bad news. As my body continued to break down.
  I’m typing this with one finger on my phone.Praying that I don’t get any any symptoms before I get too far into this.  I wanted to share as much as I can. At least before any symptoms began.
As you all are aware I started the new treatment. And I continued to have the same issues I had while I was on the last treatment. Throughout that time a few new symptoms popped up. 
 And I now have to see two more; oops three more specialists. 

And I’m still not in my own spot on top of it. So, I needed moment. At this point there may be a lot those moments). Please hang in there with me. There will be more content eventually.

As well as a videos)Even though you guys don’t look at them for some reason or another(I can take constructive criticism). 
I’d rather make those at this point and put them on here.

Let me know what you guys think. I changed a few things around as well. 

FYI: I took the ads off because they weren’t beneficial or me. No one was clicking on them. So, it was not doing anything to help me. I need something that is going to help me now. 

Tuesday, May 11, 2021

Not so Green Thumb

      My adult insists on trying to fix my not so green thumb. This time around he’s brought me a “Petite Orchid” plant with instructions for Mother’s Day. For my birthday, he brought me a plant and it didn't end too well. Being that it ended up  just being dirt in a pot with a stick. And he knows my experience over the years with plants. I promise to follow these directions;this time!And maybe one day I’ll utilize the pot from the old plant as well. 

Anyway how was your Mother’s Day? What did you get? I forgot to upload my rose. 

Thursday, April 29, 2021

Surviving Multiple Sclerosis/Medication Switch

This Has been Long over Due. 

I'm sorry I started this all the way in February and am just now getting finished. I know I have been posting pictures and videos on social media. But that's easier than trying to type right now.

So, this particular blog post did take way longer. My apologies to those that were actually waiting. I appreciate you all! 

 2/8  I started a new medication for my multiple sclerosis. One that I was not familiar with. So, I started doing a little bit of research (groups on Facebook) ahead of time. The groups help me get a better understating of what to look out for. As well as a little bit of looking into the website and the little pamphlet I was given.

  What made me depressed about everything; is most medications people can take after and or during the process I can’t take, being that I have allergic reactions to certain medications(please forgive me for not going into detail).

 I think the pain medication that I was already on helped out a lot. And for that I am grateful. 

With that being said I really had to lean on my therapist as well as the family members. Well, the ones that I do communicate with on a regular basis a lot. And they helped me from going further into depression. At that moment in time.

My creative process at the moment was put on the back burner. There were things I wanted to blog about and even make videos about. At that point I just couldn’t get out of my head, I guess.

The new medication is called Ocrevus. I was afraid of the reaction that I'd have afterward. As well as having to get used to not taking the old medication.

 At this point, I'm not sure if the medication switch was a great idea. Or if this progression was set to happen anyway. 

Being as throughout the time I was going through therapy ( occupational/physical). And still ended up with more issues. My hands having spams more than usual being one of them. And I'm not blaming the infusion because with multiple sclerosis it happens(for those of you that don't know)!

I've been having spasms in my hands. Which I was afraid would lock up on me as I type. So, instead of doing this in small increments, I  held back out of fear of my hands locking up on me.

There are also some other issues I have but I won't go into detail at the moment. I'm trying to make sort of a comeback lets see how this goes.

Do you take those infusions?  Or anything similar? If so for what? Has anyone else felt that way? If so what do you do during those times? Do you still push yourself? What is your motivation?

Sunday, February 14, 2021

Surviving Multiple Sclerosis/Change of Medication

I've recently been told I'd have to change the medication I have been multiple sclerosis. From the needle, I have been giving myself since my diagnosis in 2012 (Rebif). To an infusion(Ocrevus) that I don't know anything about. 

  Except for the brief research that I've done; as well as the information had obtained from groups that have been on in.

 On top of me already going through a few other things that just kind of pushed me to lean on my therapist more, and I felt like I needed to do more. 

 So, kind of pushed away from social media a little bit. Doing a little more watching than anything. 

Please bare with me while I get through this. I’ve gotten my first dose since I’ve started this blog. I just came to update this. I’ll be back with an update on my experience soon. 

Monday, January 18, 2021

Keeping The Same Energy


  Pay attention when people are talking to you. . Instead hearing only what you want to hear. And taking bits and peace’s from the conversations.

 It only pushes people away from you in the end. When they realize it.

   One day the same individual will be needed and will remember; that you never actually paid any attention when they needed you to,and in return will end up returning that energy.

Remember to treat people how you want to be treated.


Saturday, January 16, 2021

If You’re Lost as a Parent, Watch This | Goalcast

This is a video I came across that I believe all parents should watch. It is very insightful. Especially with us dealing with this pandemic!